I had a review consultation via telephone with the specialist at the National Migraine Centre today.
It didn’t bring quite the news I was hoping for.
I was looking forward to talking about things like ‘recovery’, ‘getting back to full health’ ‘returning to work’.
Instead we talked about ‘managing expectations’, ‘setting realistic goals’, ‘learning to live with a life-long condition’.
Disappointment doesn’t come close.
I’ve been looking at this as an unpleasant but temporary phase.
Turns out it’s more of a ‘from now on…’
There’ll be times when they have more of an impact on day-to-day life and times when their impact is less, but the migraines are here to stay.
It’s been said several times before but I don’t think it had really sunk in until now.
Oh.
In other news, the topiramate (preventative medication) should have reached full effect by the end of February/middle of March, so we’ll know by then if it’s going to work. It won’t take the migraines away altogether but it should make them easier to manage.
Sadly I need to reduce the amount of dizziness/vertigo medication I take, which is going to be horrid and means I probably can’t drive for a while.
Looks like there’s a whole new round of adjusting to do…
But not tonight.
Tonight I shall be mainly eating ice cream and watching Michael McIntyre!
I keep coming back for another look… In the vain hope that either I’ve remembered it wrong or it’s miraculously changed. It really does suck, big-time.
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Acceptance is a long road, but one that leads to better pain management. I find the affirmation “healing is not linear” relevant every day. In the meantime, my plan also involves ice cream 🙂
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