Monthly Archives: August 2017

It’s taken many years but we seem to be getting closer to a diagnosis that makes sense of all the weird and wonderful symptoms that have come to visit and decided to stay. Its been so frustrating being sent from … Continue reading →

Today I saw the most lovely lady, she is a community care co-ordinator. She was great and we have lots of avenues of support to look into. This is good news. My last neurologist told me ‘there is no support, … Continue reading →

Thanks everyone for your support following my last post. I managed to sleep in the end, I’ve facetimed some of my favourite little people, I’ve cuddled a teddy bear in an embarrassing regression to toddler-hood, I managed to get down … Continue reading →

Today is a struggling day, I’m lonely but too ill to see or talk to people, I’m bored but even the simplest things I try to do are defeating me, I want and need to sleep but I can’t. I’m … Continue reading →