Category Archives: Uncategorized

Watch “My day #migraineawareness #hemiplegicmigraine #brokenbrain” on YouTube

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Diagnosis X

It’s taken many years but we seem to be getting closer to a diagnosis that makes sense of all the weird and wonderful symptoms that have come to visit and decided to stay. Its been so frustrating being sent from … Continue reading

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Community care

Today I saw the most lovely lady, she is a community care co-ordinator. She was great and we have lots of avenues of support to look into. This is good news. My last neurologist told me ‘there is no support, … Continue reading

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Feeling proud

Thanks everyone for your support following my last post. I managed to sleep in the end, I’ve facetimed some of my favourite little people, I’ve cuddled a teddy bear in an embarrassing regression to toddler-hood, I managed to get down … Continue reading

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Bad day rant

Today is a struggling day, I’m lonely but too ill to see or talk to people, I’m bored but even the simplest things I try to do are defeating me, I want and need to sleep but I can’t. I’m … Continue reading

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,, I’m on YouTube haha

It is hard for me to write and there is only so much the microphone in my phone can do to change words to text and it makes lots of mistakes some of them are quite funny but it also … Continue reading

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