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Tag Archives: chronic migraine
Meaning and purpose
I’ve been doing a lot more thinking on meaning and purpose the last few days. I brought it up with my counsellor today to see if he had any insights and he mentioned Victor Frankl. I haven’t had chance to … Continue reading
Posted in Hope, Loss & Grief, psychology
Tagged adjustment, change, choices, chronic illness, chronic migraine, coping strategies, expectations, future, growth, Health, helpless, Hemiplegic migraine, hope, hopeless, inner strength, inspiration, invisible illness, learning, limitations, loss, meaning, migraine, motivation, psychologist, psychology, purpose, resilience, viktor frankl, wellbeing
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What am I here for?
I found it both humbling and terrifying to lose all the things that had previously given my life meaning and purpose. For me this came through illness but many people might experience something similar for a whole range of reasons. … Continue reading
Posted in Living with chronic migraine, Loss & Grief
Tagged acceptance, adjustment, change, chronic migraine, chronic pain, coming to terms with illness, confused, coping strategies, disappointment, expectations, grief, growth, Health, helpless, Hemiplegic migraine, hopeless, illness, invisible illness, learning, limitations, loss, meaning, migraine, purpose, self care
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Blue Bird Scarf: An Analogy for Loss and Grief
Post written December 2015 Loss: the suffering that unites us all We can probably all connect with a sense of loss, because we’ve all experienced it. Whether it’s the loss of a loved one, by death or by separation; The … Continue reading
Posted in Loss & Grief
Tagged bereavement, chronic illness, chronic migraine, grief, loss, migraine, spoonie, support
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A hope and a future
I’ve not blogged for a while, a long time in fact. It’s been an intense few months of finally starting to come to terms with this new life I’ve been landed with and it’s left me a bit too raw … Continue reading
What does migraine mean to me?
It’s migraine awareness week and The Migraine Trust have suggested that people share what migraine means to them, so here goes… Migraine means regularly experiencing pain that made a broken foot seem so insignificant I didn’t even notice, but also … Continue reading
A celebration of frustration
You might have gathered from some recent posts that I’ve been getting frustrated recently. In fact, I’ve been more frustrated than if I was playing in a tournament of the game that drives you popping mad The limitations of not … Continue reading
Posted in My story
Tagged boredom, chronic migraine, frustration, pacing, progress, spoonie life
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Special delivery
So my new treatment device has arrived… Not only is it good for playing innuendo bingo, it’s also a highly developed new technology that’s recently come on the migraine scene. (You can find out more at gammacore.com if you’re interested) … Continue reading
Posted in My story
Tagged chronic migraine, gammacore, hopeful, new treatments, science, technology, treatment plan, vagus nerve stimulation
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Onwards and upwards
At last I can write a celebratory post 🙂 The combination of topiramate and nortriptyline seems to be working to some extent and there’s finally been a bit of progress. Back in January we set a bold target of having … Continue reading
Posted in My story
Tagged chronic migraine, gammacore, nortriptyline, progress, topiramate
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Post poach – secrets of successful chronic migraineurs
A post on migraine.com caught my eye today. It made some interesting points so I thought I’d share it. You can read it here if you’re interested: 10 secrets of successful chronic migraineurs If you don’t want to read the … Continue reading
Posted in Living with chronic migraine
Tagged acceptance, chronic life, chronic migraine, strategies
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Mindful Mondays – Bitter Sweet Symphony
Sometimes life can seem wonderful, the sun is shining, we’re on top of the world and everything’s going our way. Then at other times the walls come crashing down, we’re left desolate in the rubble of the blows life has … Continue reading
Posted in Mindful Mondays
Tagged chronic illness, chronic migraine, good and bad bits of life, mindfulness, pain management
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One year on…
Today marks an anniversary of sorts, though not really one I want to celebrate. It was one year ago today, on the evening of Sunday 16th March 2014 to be precise, that the first full migraine struck after coming off … Continue reading
Posted in My story
Tagged chronic migraine, migraine, migraine fighter, my story, pushed to limits, spoonielife, still standing
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The Code
After the Mystery Option C and Dilemma posts, my friend Tony had an idea – if I found it difficult to talk about how I was actually feeling, perhaps I could use some kind of visual symbol or code, like … Continue reading
Mindful Mondays – Primary Pain & Secondary Suffering
Sometimes life sucks. And there’s nothing we can do about it. Or is there? It’s inevitable that we will run in to testing times at some point in life, whether that’s in health, relationships, work, finances, or something else. These … Continue reading
Mindful Mondays – an introduction
I’ve mentioned a few times I’ve been using mindfulness over the last couple of months and it’s been really helpful. A lot of people have shown an interest in it and have asked for more info so I’m starting a … Continue reading
Posted in Mindful Mondays
Tagged chronic migraine, migraine, mindfulness, pain, pain management, spoonie, spoonielife, wellbeing
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It’s not all doom and gloom
I’m aware that my posts have been a bit more negative recently. I’m not sure whether I should apologise for that or not – I did say I’d be honest after all. But I do want to redress the balance … Continue reading
Mystery Option C
Thank you so much to everyone who responded to the previous post Dilemma, either in person or online. I’ve really appreciated your honesty on how you talk about (or more often don’t talk about) invisible illnesses with friends and family. … Continue reading
Posted in Friendship, Living with chronic migraine
Tagged chronic illness, chronic migraine, invisible illness, migraine, spoonie, spoonie life
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Dilemma
Migraines are invisible. Which means no-one can see just how much devastation they cause. On the inside, it’s like a big-budget disaster movie. Tornados wreak havoc, tsunamis broil out of control, volcanos erupt sky-high. Everywhere you look the landscape has … Continue reading
Spoons
I tried to explain Christine Miserandino’s spoon theory to some friends the other day but it didn’t go so well. My explanation went something like this: “It’s about spoons… …well not really spoons, but yeah, spoons… …so you have these … Continue reading
Posted in About chronic migraine, Living with chronic migraine
Tagged chronic migraine, limitations, migraine, spoon theory
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Migraine-free me 