Today I saw the most lovely lady, she is a community care co-ordinator. She was great and we have lots of avenues of support to look into. This is good news. My last neurologist told me ‘there is no support, the NHS is crumbling before our eyes’. Fortunately we now have a new neurologist who has a bit more optimistic outlook (and plenty more treatments to try that we hadn’t even heard of, hooray. The last neurologist seemed to think we were all out of options, bah humbug)

So I now need to get my head around being referred to adult social care and occupational therapy and look into different types of adaptations and equipment, which would be easier if the leaflets didn’t look like this…

Or this…

I know people call me dementia granny but I’m not quite sure how I feel about having grab rails and equipment all over the house yet. I’m very grateful but it’s hard to get my head around it at the same time. Good to know there are options though and hooray for this lovely care co-ordinator and a good visit today. Thanks to everyone who sent prayers and good wishes for it. Also thank you to the St Thomas’ people who have offered so much support, especially our life group, she couldn’t believe how supportive people have been and loved hearing about people’s generosity and kindness. Thank you for the people who cook and do laundry, who wash up and do gardening, who hoover and clean, who run errands and do shopping. It makes a massive difference. Thank you x