For the people who’ve recently asked how I got in to blogging and why I called the site migraine-free me, and for others who might have been wondering the same
Why do I blog?
I write to help make sense of the thoughts, feelings and experiences that come from living life with chronic/continuous migraines and everything that comes along on this weird and wonderful journey.
Writing helps it to feel more real, helps me to keep a sense of perspective and stops things running round and round my head like a hamster on speed.
It also gives the time and space to express myself properly – something I can’t do very successfully in face-to-face conversation at the minute (a post can take days or even weeks to write, a sentence at a time, nothing’s quick with a migraine!)
I used to journal but all the scribbling out to correct simple migraine-brain mistakes made my beautiful books look a mess and just made me sad. Writing on an app means mistakes can be erased and keeps me a lot happier 🙂
Some posts I make public, some I keep private. I make posts public so friends and family can find out what’s going on if they want to. I don’t want to hide what’s happening and I’m happy to be honest but I want people to make their own decisions about how much they want to know.
I purposefully don’t bring my health up in conversation unless people ask directly (I don’t want to end up sounding like a broken record!) but when it’s in a blog post, people are free to choose what and when they read.
People often ask questions about chronic migraine because they haven’t heard of it before, so I also hope to spread a bit more understanding about my own experiences of a health condition not many people know about.
I said from the start that I would be honest about the different aspects of my journey but I never share these in a bid for pity or sympathy. I hope it never comes across that way – please tell me if it does!
I blog mainly to connect with others – friends/family and people who are going through similar experiences. It’s easy to fall in to thinking that you’re on your own when something difficult goes on for a long time but knowing that people are following the blog lets me know that I’m not alone.
I first chose migraine-free me because my ultimate dream is to be totally migraine-free and I have to keep hoping for this to happen.
But because I’ve come to see that this is highly unlikely, it then evolved into a prompt to use the solution-focused techniques I use so often at work.
Part of this approach is to imagine what life would be like if the thing that you hoped for most came true. For me the ‘miracle question’ is:
What would my life look like if I woke up tomorrow and the migraines were completely cured?
There are so many things I can picture myself being and doing if this did happen – by imagining this hoped-for future I can focus on the bits that are already present in some way or another and work towards the parts that I want to see, even if they end up looking quite different in reality (for example if I was migraine-free I would go out with friends whenever I wanted –> I know friends are important to me –> I can celebrate the times I do get to see or connect with friends and work out how I can try and see or connect with friends more often in my current circumstances)
So that’s how migraine-free me started off, but it’s also come to stand for something else – the part of me that’s still me, despite the migraines.
Even though life has changed almost beyond recognition, I refuse to be defined by my illness and the limitations it imposes on me.
Going through this journey is deeply unsettling and challenges just about everything – I want to be open to changing and learning as I go but I also need to hold on to who I am in the midst of it all.
So that’s why I blog, and that’s why I call the site migraine-free me.
Feel free to ask more questions if you like and I’ll do my best to answer them!